Brooke Brookreson-Williams.
  • blog
  • poetry
  • sketches

Tough Girl; Be Gentle (Part Two)

11/29/2015

7 Comments

 
In "Tough Girl; Be Gentle" (Part One) I briefly explained the past history that has led us up to what we are facing today ... the wreck, the broken/crushed body, the miraculous pregnancies, the losses, the complications, etc.

"Tough Girl; Be Gentle (Part Two) ... this one ... will try to explain what is going on now, and what we are facing now.
In Part One, I gave my first small hint of the beginning of the problem when I was describing My Middle Miracle's pregnancy and birth ... she was my "easiest" ... but after her delivery (all of my babies had to be delivered vertical C-Section) I was given the warning that "scar tissue was developing at an alarming rate, and we had a challenge getting to her."

 We didn't know what that meant back then ... but when you continue reading Part One you will find the words "scar tissue" repeated often.

Like I said in Part One, scar tissue (in and of itself) is necessary and normal. ​ It is how our bodies are designed to heal itself. Every time you cut yourself, our bodies heal itself by producing scar tissue. Every time you undergo surgery, your body produces scar tissue to close up, and seal, from inside out ... to help seal the healing process. Scarring is NECESSARY to proper healing. It is an amazing part of how we were fearfully, and wonderfully, made.

Major trauma to your body causes scar tissue ... I'd think being literally "crushed" can be considered major trauma. I'd also think multiple major surgeries (in addition to three vertical C-Sections) can be considered major trauma.  My body has endured, and survived, many forms of major trauma.

I am, indeed, a tough girl ... be gentle.

When a body has been through as much as mine has, you become very intimate with yourself. You KNOW your body. You can feel, literally, when something is not right. I'd say within the last 3 years "that feeling" increased considerably. ​ It was becoming more and more apparent (through changes in my body that I could feel, combined with the rapid growing of discomfort/pain) that a need for another surgery was growing more and more imminent .... I would mention it here, and there, every once in a while to the people closest to me, but I think "because I never followed through, or seriously pursued it" I don't think I was taken seriously by them.

I will be extremely honest, and therefore making myself extremely vulnerable, by confessing that back in the months from January to April I begged and pleaded for God to take me ... please, Father, let me go to sleep .... forever ... and please let me wake up in YOUR ARMS .... take all this pain away ... I am ready, Father .... please ... take all this emotional, mental, physical, Spiritual pain away ... I give it all to you ... I can't handle it anymore .... I don't want it anymore ... please, let me go ... I am ready to, and I want to, die.

I do believe if you were watching my Facebook page around this time ... and I even wrote a blog about it; I think ... you ​​might have picked up a few clues of just how desperate and hurting and scared I had become ...

I'm still there ... but, dadgummit, I am a Tough Girl.

I have to admit, now, with all this coming to the surface and happening so fast, if maybe .. just maybe ... God is compassionate and merciful, and has heard my prayers, and is setting the stage to answering/grant them for me.

Who knows? All I can say, and will say, is this: LET HIS WILL BE DONE. AMEN. SO BE IT.

So let's get down to the nitty-gritty, shall we?

If you've been following my Facebook page, it's public, you should be able to go back to September 16th ... when it all started.

I finally swallowed my pride, and kicked stubbornness to the side, and made myself with an appointment at the brand-new Texas Tech University Clinic here ... I filled out the history form, yada yada yada, and climbed upon the paper-covered medical lounge chair, and proceeded to verbally go over the history form with the doctor ... yeah yeah yeah, let's take a look, lay down ... and the external, manual palpations of my body began ... and, immediately I could tell he realized this lady wasn't full of delusional bullshit.

I was assigned a medical case manager. Extensive labwork was immediately ordered. Mammograms were immediately ordered. CT Scans were immediately ordered. Ultrasounds were immediately ordered. ETC ETC  ... we need to schedule an MRI ASAP .... okay, just let me know.

Then the bombshell was dropped ​on me ... the case manager calls me, and tells me, basically, this is way over our head and we can't help you, and you need specialists, and blah blah blah (all of this is on facebook) .... and so here's what the CT Scans and all those other diagnostic imagings revealed.

In a nutshell .... they really freaked out over my breasts ... they felt something troubling and wrong ... the mammogram and ultrasounds of my breasts show that they are still very healthy ... too healthy for a woman my age ... I breastfed all of my miracles until they were two ... well, Lindsey wanted it until she was two and a half ... but, anyway, all the "suspicious lumps and weird trunk-like things" they felt upon manual palpation was just my milk canals and milk ducts and milk glands WHICH ARE STILL ACTIVE AND ALIVE .... that really through them for a loop, as you can imagine ... and me, too, actually, but evidently it seems my body still thinks it needs to prepare to nourish an upcoming baby ... maybe the after-effects of the last, most recent loss that was re-absorbed into my body? I have no idea, and they don't either, but anyway if any of y'all need a "wet nurse" I'm available.

CT SCAN results are way more detailed and serious, and I'm just going to gloss over them and keep it as simple as possible.

Lower Lobes of Lungs are collapsing.
Large, tangled mass of arteries, blood vessels, and capillaries adhered to surface of liver.
Undetermined adnexal-type mass outside of uterus ... remaining fallopian tube ​(most likely the last ectopic pregnancy?)

Nevermind, I've decided I cannot do this ... nor do I want to do this.

Bottom line is this: first of all, you CANNOT see scar adhesions/tissues on any diagnostic image .... no matter how advanced ... you cannot know exactly what you are dealing with, nor the extent of it, until you are cut open and can see with your own eyes what is there.

The facts from past surgeries, re-read the details of the births/surgeries from Part One, combined with recent diagnostic imaging results, and manual palpation examinations, show that​​​ my entire torso is covered with invasive scar tissue.

Like I said, scar tissue is necessary. But my body, for whatever reason, produces way more than I need ... I have invasive, spreading scar tissue that is choking/smothering major organs and cutting off blood/oxygen supply ... it is invasive and spreads like cancer .... just keeps growing, and spreading, and covering everything in its path ... the specialist told me Wednesday, that the last surgery I had, it was like CONCRETE inside of me ... the organs (mainly my intestines/uterus at the time)​ were so tightly fused together that it was one solid hard ball.

​Well, that was ten years ago ... they did the best they could then with the knowledge that they had at the time, and separated and sheared as much as they could .... placed additional mesh inside of me (which has since slipped, and had embedded (literally grown into) into my organs.

So what we are facing Friday is serious.

They did not sugarcoat anything ... my mother was there as a supporting witness ... she cried more than I did .... actually, I don't think I cried. Actually, I know I didn't. I looked the surgeon right in the eye, and told him if he put me under and I didn't wake up, that I was at total peace with that. I'm ready, and have been ready. I wish I could describe the look on his face. He reached out and took my hand, and with moist steely eyes told me, "I guarantee you will wake up from my table. What I can't guarantee is the first five days afterward. It will be pure hell. And I have to warn you of that. There is no medicine that will completely cover the pain. You could bleed out. You will have to be watched around the clock for first signs of  fever and infection. Your condition can quickly turn septic, and its nearly impossible to turn that around once a body goes into sepsis."

He said more, but I will stop there ... I just looked at him and said, "Okay."

I need to wrap this up.

I will be completely gutted Friday. Me on one table, and my organs next to me on another stainless steel table. The organs must stay moist at all times, and cannot dry out. The organs will be painstakingly "fileted" of all the scar adhesions and tissues that have them tightly fused together like concrete ... one nick, one tiny pinprick, one puncture, one slip and slice is NOT GOOD ... there will be TWO specialists working on me side-by-side, with another on emergency standby ... two eyes, two hands working as fast as they can while still being as careful and steady as they can to avoid any possible mistake ... time estimated on the table? 4-9 hours.​​​ The longer I am under, the more the risks increase ... to be intubated that long, to be exposed and open that long, keeping the organs moist that long etc etc

I have a ton of pre-op tests tomorrow ... those of you who've had surgery know this ... mine will be a little more extensive .... standard EKG, standard labwork .... getting blood ready for transfusions which are already anticipated .... chest e-rays to see more closely how long I can be under, intubated, and on a vent and will I have trouble getting off the vent and breathing on my own? so, so,, so so, so much involved and I really rushed through it.

All of a sudden I am uncomfortable sharing all of this, but Ive always been pretty much an open book .... and I am a Woman of Faith, and believe in prayer .... I personally do not know what to pray for ... but, please, pray for my children; MY MIRACLES.

Once again, I am publishing this without editing or proof-reading ... please overlook the errors ... I've left a ton out, and I typed all of this out without any real thought of precision and structure ... sad, for an English major ... but I'm pouring my heart out, and not expecting to be graded .... if you grade me, shame on you.

I love y'all :)))​​​​ And God Bless.​
7 Comments

 Tough Girl; Be Gentle (part One)

11/28/2015

 
I am facing an extremely high-risk major surgery in a few days, December 11th to be exact, probably the most "major" I've ever faced .... and I have faced A LOT ... and this blog is an attempt to explain some of the hows, and whats, and whys so maybe you'll ''kinda' understand why it's going to be "extremely high-risk major."

I'll tell you right now, I'm going to ramble ... bear with me ... maybe it'll all come together, and make sense, once you read/see the whole picture.

And, if it doesn't make sense, you're not alone .... I have physicians and specialists who are scratching their heads, taking deep breaths and wringing their hands ... this is going to be a real tough case for everyone involved, and one not seen often, and one the medical community as a whole is just now really starting to understand the depths and seriousness of this invasive condition.​

In fact, just the other day, sitting down with the doctor, Wednesday I believe it was, for one last consultation before the surgery, I point-blank said to him, after listening to him once again go over all of the dangers to make sure I really, truly understood, I whispered, "I am screwed aren't I."

His response was empathetically simple, "Yes, you are." ​

The few times I've tried to explain my medical history, to my friends, most respond with no real response because they don't know how to respond .... they cannot wrap their minds around it, and it seems so far-fetched that they find it hard to believe. And, truth be known, it really IS hard to believe ... but that does not change the TRUTH of the matter: I HAVE MADE IT THIS FAR WITH THIS LEGITIMATE PAIN, AND THAT IS SOMETHING VERY BELIEVEABLE.

​My entire medical history is amazing, and mind-boggling and, quite honestly, a miracle so far.

Let's go back to the fall of 1988. This is where it all started. A young woman in perfect health. Never even had a cavity. Still haven't at the age of 45.9 .... but I digress.

I was in my first year of nursing school in San Angelo. Already going into my clinicals. I worked hard to make my perfect scores. I was home for a weekend break. ​Of course, I found a local party to go to before I ever left San Angelo ... with a pool table, and plenty of sweet wine coolers  ... and I ate my delicious home-cooked meal with my family, and headed to the party in Tuscola as soon as I could.  Believe it, or not, I was still under a strict curfew. I never made it home that night.

My father woke up from a sound sleep, and yelled "Where's Brooke???" He puled on his cowboy boots, and put his bathrobe over his white Fruit-of-the-Looms​ underwear ... and went out looking for me.

He found my car upside down in the middle of the road on one of the curves by Lake Abilene past the State Park outside of Buffalo Gap. Music Blaring. Pitch Blake. Only my glaring headlights.

I was listening to Def Leppard, by the way, and my last memory was crooning  "Love Bites" from the bottom of my heart and the tops of my lungs.

But I digress.

I was thrown from the vehicle, and the car flipped, and landed on top of me ... crushing me ... from below my sternum to the tops of my thighs ... breaking, crushing, rupturing and shattering everything in between.

This was the FIRST major trauma to my body. ​​​​

The fact that I wasn't killed instantly from being ejected from a moving vehicle, like a ragdoll, is a miracle ... the fact that I wasn't killed instantly from having a vehicle land on top of me, crushing me, is another miracle ... ​the fact that my father woke up from a sound sleep, and found me in the middle of the night, and lifted the car over by himself, and found me face down in a puddle of my own bodily fluids (blood/urine) is another miracle ... the fact that he wrapped me in his bathrobe, and carried our bloody bodies into the ER (DOA) is another miracle ... the fact that I am not brain dead is a miracle ... the fact that I am not paralyzed is a miracle ... the fact that I have been able to conceive, and carry, MY THREE LIVING MIRACLES TO LIFE (after I was told I would not be able to) is a miracle ... everything is a miracle.

 I live with pain every single day ... some days worse than others ... it is a shame those who do not understand, and assume I am lazy and not motivated to be a hard-working, maturely-scheduled, normal-routined, productive, regularly-employed ADULT in the REAL WORLD who climbs the ladders of another man's dream. ​

I digress ... what's new? ... but maybe there's a little more to it than that. 

Aside from the literal pain I live with everyday, maybe being a free-spirit and dreaming my own dreams, and having entrepreneurial blood coursing through my veins, and, maybe the thought of answering to no one but my Self, and being my own boss and relying upon my own Self to hit the pavement, producing my own income, relaxing when I want to, setting my own goals, taking breaks when I need to and, basically, having the freedom to pick/choose my own assignments/schedule .... brings me more accomplishment and joy and peace and rest and satisfaction than being a robot in the ready-made world we were born in.

Just because my ambitions, and beliefs, and dreams, and goals, and life-style preferences, and personality, and ​"priorities" and strengths/weaknesses, and thoughts, and values are a little different than yours DOES NOT mean I am inferior ... in fact, it just might mean I'm somewhat superior, but it's just not recognized anymore in this world we live in.

But I digress yet AGAIN.

Major trauma to your body causes scar tissue. It is how our bodies are designed to heal itself. Every time you cut yourself, our bodies heal itself by producing scar tissue. Every time you undergo surgery, your body produces scar tissue to close up, and seal, from inside out ... to help the healing process. Scarring is NECESSARY to proper healing. It is how we are miraculously made.

I've had MAJOR TRAUMA being crushed.  I have had more open abdominal surgeries than I honestly can count ... I've also had more miscarriages, and lost more babies, than I can count.

There is a reason I call Lindsey: My Oldest Miracle .... and Laura: My Middle Miracle ... and Nani: My Youngest Miracle.

They survived. Against the Odds.

In Sept/Oct 1991, I spent the last month on total bedrest with Lindsey, My Oldest Miracle, and they had to take her vis total/vertical abdominal C-Section a good month early because of complications, and she was born "dead."

Two miscarriages between these years.​

In May/June 1995, Laura, My Middle Miracle, was my "easiest" pregnancy ... if there is such a thing for me ... I had the same total bedrest .... which is basically impossible with the  3 1/2 year old Lissy ... ​they took Laura early, too, with very little complication except the warning the scar tissue was developing at an alarming rate, and we had a challenge getting to her. We didn't know what that meant back then. Oh, Wait, I almost forgot .... the abdominal incision completely ruptured/un-zipped when she was about thee weeks old .... we had to debride and scrub that open wound daily with a brush and iodine ... talk about EXCRUCIATING PAIN.  

Three miscarriages between these years. ​

In Mid-Feb 2002, I became pregnant within a fallopian tube ... they went in to surgically remove it ... I had so much invasive scar tissue that the fallopian tube was gangrenous from having the blood/oxygen supply cut off from it ... had we not caught it, I would not only have possibly died from a tubal rupture, but from sepsis. I was told I should not have any more children at this point. No problem; I think I'm through.

One miscarriage between this year.​

In August 2003, my abdominal wall ruptured ... this was my "first" mesh repair ... it was very painful, and risky ... the intestines had begun fusing together at this point ... I was told I could/would not have any more children at this point.​

In late April of 2005, another miracle, I became pregnant against the​ odds ... one remaining fallopian tube, and one damaged ovary ... I didn't realize I was even pregnant until the womb started to emerge out of the pelvic floor .... I'm guessing around July ... they immediately admitted me to the hospital because as the womb grew, and my abdomen expanded, it began unzipping like a zipper, and I was assigned two specialists to oversee this pregnancy and my well-being. Both of us were very high risk. The baby had a neonatologist that monitored her growth every single day. I was in the hospital the last three months of my pregnancy, and they still "took her" a good two months early (as soon as they were confident she could survive on her own.)  Nani was born November 4th, and it took a team of four specialists in that operating room to make that happen. What should have been a simple C-Section, turned into a 4+ hour operation.  Two OB/GYNs, the Neonatologist, and one specialized General Surgeon. There was sooooooooo much invasive scar tissue that they couldn't get to her. Not only that, but the mesh hernia repair impended the surgery. I found out later that the scar tissue was so bad, BACK THEN, that they were worried I would not make it.
 
I had total abdominal reconstruction surgery immediately following the birth/removal of Nani ... with strict instructions and guidelines to follow afterwards to help ensure my remaining physical health ... and they told me without a doubt that despite my body, and it's amazing ability to survive the most impossible things, I will never get pregnant again.

Okay. Fine. I don't want to die, and I definitely don't want any more of my precious babies to die.​ ​​

But God has His own timetable for miracles, and a few years ago, I did get pregnant again .... extremely; very very much against the odds ... this time the embryo attached to the fimbrial fringe of tendril-like tissue at the end of the fallopian tube. There was no way, in the world .... no miracle at all ... that this one could/would survive ... only the conception was the miracle of all miracles ... our choices were few ... I could not have another surgery at that point ... we were told eventually the embryo would grow to a certain point, be unable to thrive without proper nutrients, and eventually die (usually no later than 12 weeks) on its own,  and be re-absorbed back into the mother's body. That is exactly what happened. We were also told that there was a special "shot" that could help speed the process ... ​I'm crying just thinking of it all .... this emotional ordeal was just as painful as the surgical ordeal endured in 2002 ... there is NO easy way to accept losing a baby.

During this last "loss" ... and the hormonal/physical changes that it inevitably placed upon my already broken body ... it became apparent that another need for surgery was growing more and more imminent .... I would mention it here, and there, every once in a while .... but I think "because I never followed through, or seriously pursued it" I think I wasn't taken seriously.

I am going to close this now .... I think giving the background was harder than I thought it would be .... I kept having to walk away from it .... I'm sorry.

Part Two Of "Tough Girl; Be Gentle" will go into detail about what has QUICKLY happened since September to NOW .... and I WILL GET IT DONE TOMORROW ... it will be easier because I can go by CT SCAN RESULTS, and Ultrasounds, and Consultations, and all that marvelous stuff ......... THESE PEOPLE DON"T MESS AROUND ONCE THEY FIND A SERIOUS PROBLEM.

p.s. I am not going to re=read this and edit it .... if there are mistakes, please forgive me and overlook them .... I'm exhausted.​
    “.......one of the evidences that God is conforming [transforming] you to His image is that
    many will think you have lost your mind, and have gone off the deep end.”
    Picture

    "It's all about living your Life like a full-time job...writing about it is easy once you get into the groove." John Wells

    (Best Advice I've Ever Been Given)


    Archives

    August 2018
    November 2015
    May 2015
    April 2015
    March 2015
    January 2015
    December 2014
    June 2014
    February 2014
    January 2014

    Categories

    All
    All In A Days Work
    Apostle Peter
    Carnality
    Depression
    Forgiveness
    Gospel
    Jesus
    Kingdom Of God
    Lessons
    Musings
    Passover
    Poetry
    Prophecy
    Repentance
    Science
    Spirit



    "Don't position your "brand" as anything other than who you really are ... who cares what the market wants."
    - Donald Miller

    RSS Feed


About Brooke 
© Brooke Brookreson 2013